This waiver provides general information about the background, confidentiality issues, and benefits and risks of Link2Care. We will be using confidential, number-coded information from the intake, assessment and reassessment documents, client satisfaction survey responses and statistics gathered on our computer to evaluate the benefits of Link2Care for caregivers. All information will be kept confidential.
Please read through the waiver form. A button at the bottom of the page will ask if you agree to the terms outlined in the form. If you agree, please click through to the next level to register. If you have any questions or concerns about the waiver, please contact us at email@example.com or call (800) 445-8106.
Link2Care is an Internet-based information and support program for caregivers of adults with dementia. The principal organization for project administration is Family Caregiver Alliance (FCA), San Francisco. Link2Care is available to caregivers living throughout California served by one of California’s 11 Caregiver Resource Centers (CRC). Link2Care is also available to caregivers of patients assessed by the Alzheimer's Research Centers of UC Davis and USCF. Link2Care is made possible through grants and donations.
Link2Care was created to offer a reliable, helpful and convenient Internet-based information and support system for family caregivers of adults with disease related dementia. We hope the program will help:
What is Link2Care?
Link2Care is a service for caregivers available on the Internet. It is only accessible to those with a user name and password. Link2Care can:
What does participation involve?
As a caregiver, you will enroll in Link2Care and will provide a user name and password for entry into the Link2Care site. Please consider your user name and password as confidential information; that is, please do not let anyone else use your user name and password or leave this information visible to anyone else. Periodically we will be asking for your feedback on how Link2Care works for you through surveys which can be filled out online or sent by mail. Your responses will be used to improve the site and services of Link2Care.The computer will automatically collect data on how often and for how long you use each of the various parts of Link2Care. Program staff will use this data to determine which parts of Link2Care are the most useful. We will look at trends over time for persons using Link2Care as reflected in the client intake, assessment and reassessment information. We will use this information to determine if the program helps to increase coping skills and reduce isolation for caregivers.
How will we protect your confidentiality?
Ensuring your confidentiality is very important to us. Only the staff at FCA and your local CRC site coordinator will have your name. The only exception is that your e-mail address will appear when posting to the Link2Care Discussion Group. Your name and any identifying information will be removed from any data collected, and it will be labeled with an anonymous code number before it is passed on to the rest of the research team. This information includes information taken from the client intake and assessment documents completed by the staff at the CRC and Link2Care registration information. Participant lists will not be provided to anyone outside of Link2Care.
What are the costs of participation?
There is no cost for you to participate in Link2Care, assuming that you already have access to the Internet. Limited scholarships may be available through some CRCs to purchase Internet access or borrow a computer. Contact the CRC in your area for more information.
What are the benefits of participation?
Link2Care enables you to obtain information, advice, social and emotional support and decision aids from the privacy of your home. You will have access to the latest information on new treatments and progress in research relating to dementing conditions. You will have access to advice from experts in medical, legal and caregiving fields.
What are the risks of participation?
There are risks to this project like most things in life, but we believe the risks to be extremely small. We have tried to anticipate and mitigate any risks to the participants.
What if you change your mind?
You are free to disenroll from Link2Care at any time. A decision to withdraw will have no effect on your use of the other services offered by your CRC. Please contact the project manager at firstname.lastname@example.org or call (800) 445-8106 with any questions or concerns you may have. All contact will be treated confidentially.
Waiver AgreementLink2Care content should be used for information purposes only. All Link2Care content, including Ask an Expert should not be considered medical or legal advice nor should it be used as such. Messages in the Discussion Group and content of any video clips in Link2Care are the express views of individuals only. For specific medical or legal opinions, please consult your physician or attorney. Coast CRC, Del Mar CRC, Del Oro CRC, FCA/Bay Area CRC, Inland CRC, Los Angeles CRC, Mountain CRC, Orange CRC, Redwood CRC, Southern CRC, Valley CRC, the UC Davis Alzheimer's Research Centers in Martinez and Davis; Kato and Feder, Attorneys at Law, San Francisco, or the employees and agents with these organizations, make no warranties and representation as to the completeness, currency or accuracy of Link2Care content. All rights reserved. No content of this website may be reproduced or transmitted in any form or by any means including electronic, mechanical (including photocopying) or recording, for other than personal, noncommercial use, without the express permission of Family Caregiver Alliance, 785 Market Street, Suite 750, San Francisco, CA. 94104.
email:email@example.com. I have read the above and choose to participate in the Link2Care program described above. I agree to allow the staff at the Caregiver Resource Center to send number coded information from the client intake and assessment documents to the research staff for evaluation purposes only.
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